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"The National ME/FM Action Network applauds the work of FM-CFS Canada to develop the current national coalition of nearly 100 patient groups, to present a wide-ranging survey of issues and ideas to the Federal Government, to involve several medical associations to educate their members, to build a Patient Registry to help researchers find patients, and to work at a national press campaign to educate Canadians. The National ME/FM Action Network has long worked to advance the interests of the community, and welcomes the help in this important cause."

Lydia Neilson, President,
National ME/FM Action Network

 

 

"Our top priority is to make people healthy through improved treatments or a cure. One of my close friends has the illness and I don't want to see him live the rest of his life with it. Governments have known about the illnesses for years and haven’t acted. How many patients is enough for them? We’re already more than one million. But there’s hardly any research underway. Clearly, alot can be done to improve things.

We welcome your support, your time, your donations."

John Ernst, Executive Director
FM-CFS Canada

 

Home > Support Groups

FM & CFS/M.E. Support Groups

Section Overview
 Support group resources to share
Canadian groups
Other related groups
Groups outside Canada

 

Support group resources to share
FM-CFS Canada has been creating resources that can be re-used by others across the country, please feel welcome to do so.   Contact us to take on a piece of the plan.

  • We can help your group be found
  • Share promotional materials that you can customize
  • A common media kit with strategy, stats, costs, etc.
  • A national action plan - join in please!
  • Video, with more to come.
  • Documents: FM & CFS issues survey; Vision & Business Plan; support letters; studies, decisions, etc.

    The left-hand navigation area has links to resources for groups, or click here.

     

    In 2005, the groups listed below presented a national plan to Government as a coalition:

    National Groups

    FM-CFS Canada
    National ME/FM Action Network


    There are two national charitable organizations for CFS/M.E. & FM in Canada.
    Lydia Nielson, M.S.M., President of the National ME/FM Action Network, has been on the FM-CFS Canada Advisory Board since 2002.   Odile Gérin, a Vice President of the National ME/FM Action Network, joined the FM-CFS Canada Advisory Board in 2005 to increase day-to-day cooperation.   Since mid-2005, Lydia and Odile have been involved in FM-CFS Canada's internal communications, and attended formal and informal meetings of the Board as part of the planning and policy development process. The Network's Quest newsletter even devoted two columns to FM-CFS Canada.

     

    British Columbia

    CFS, ME & FM Groups outside Canada

    Patient Sites: