Starting a group:
If you would like to start a group in your area, or serve as a rally point for patients, please contact us. If there are no groups in your area, we can help you connect with other patients and families in your region. We can post a web page for you to share your contact information, and link to you from our home page as we do to groups across Canada. When you have some people assembled, you can elect a leader if you wish.
Tools for running groups successfully:
We have a media kit for the group, a survey of all the issues, some coordination of efforts nationally, free web pages, a kit with a range of short tasks for volunteers, statistics, expert media contacts, and some coaching.
You can find additional information to print and distribute in the Patient, Caregiver, and Physician sections. Visit the 'Tools for Groups' link to see more free resources you can use, personalise, or print for your Canadian group.
Click here to read Sheila McCarthy's"A Self-Help Group Leader's Hindsight" for more useful lessons well presented.
Click here to read Sheila McCarthy's"CFIDS, USA, Start a Group, info"
|
