PATIENTS | CAREGIVERS | PHYSICIANS | RESEARCHERS | SUPPORT GROUPS | PARTNERS | DONORS | MEDIA | VOLUNTEERS

Media

Media Contacts
Quotes
Personal Stories
Previous MP Support
Story Ideas

Testimonial Index

Type of story :

1. Harmful misdiagnosis or a long period of misdiagnosis/Diagnostic dommageable ou une grande p/riode de mauvais diagnostics
Emily, Esme, Nicole, Theresa, Sophie, Sherry, Jennifer

2. Family troubles or breakup/Problèmes familiaux ou dissolution
Esme, Theresa, Jennifer, Dave, Greg, Cynthia

3. Positive story/Histoire positive
Sarah, Emily, My Name is Encouragement, Jennifer, another Jennifer, Rita, Cheri

4. Financial loss, court challenge, claim problems/Perte financiaire, défi de cour, problèmes de réclamation
Phyllis, Michelle, Jessica, Patrick, MK, Men with Fibro,

5. Loss of career/Perte de carrière
Cynthia, Pat, Sarah, Sheryl Ann, Debbie, Bill, Elaine

6. How a treatment strategy works for you/Comment une stratégie de traitement travaille pour vous
Sophie, David, Michelle, Lizette, Betty, Sarah, Cynthia

7. How you have been treated by people/Comment les gens vous traitent
Cheri, My name is Fibromyalgia Sarah, Jennifer, Sheryl Ann, Sarah, Theresa, Sophie

8. As a caregiver, a family member/Comme personne à charge, un membre de la famille
Greg as caregiver, Bill as caregiver, Fallon's mom, Dakota's mom, Sarah & family

9. Physician/Médecin
A Doctor with CFS,

 

A Physician's story

Nearly 20 years ago a famous Canadian pain researcher. Dr. Ron Melzack of Montreal gave a speech entitled "The tragedy of needless pain." Sadly, despite a great deal of new scientific knowledge, this tragedy continues to unfold.

The problem is, the wealth of new scientific knowledge regarding chronic pain in general, and specific pain problems like fibromyalgia, is not being transferred to health care providers. Old and outdated ideas continue to be taught resulting in much frustration and needless pain, as well as staggering costs to society in general and to individuals. This campaign aims to increase the awareness of health care providers and decision makers about numbers of patients, the cost to them and their families and to society as a whole.

By providing information about current scientific data for use in research and clinical treatment FM-CFS Canada aims to materially reduce the cost to individuals and to society of chronic pain.

Ellen N. Thompson, MD, Ottawa